Another Update!

I wanted to add an update again today because a lot happened last night/today. Josie is no longer on ANY meds and they removed her feeding tube. She has "nippled" all of her feeds in the last 48 hours. She is more than half-way to the amount she needs to eat to be dismissed. She weighed 4 lbs. 2.9 oz. and needs to gain about 7 more oz. She stayed all night in the open air crib and maintained her temperature well. They administered the hearing test and she passed that. The nurse on duty thinks Rider AND Josie will get to come home sometime next week!They have to wait 3 days from the last dosage of medicine for Josie to have her sleep study so that will be sometime after Sunday morning. Rider's sleep study is already scheduled (not sure if it is tonight or tomorrow.) I met with the physical therapist today to learn how to put Rider in his car seat. Here is a little side note/public service announcement: The additional pieces or supplements in car seats have been safety tested and do not perform well. The physical therapist asked us to take ours out to leave the hospital, but said it was our decision what to do when once we got home. Part of the car seat lesson was adding receiving blankets to the proper places so that Rider fits perfectly. I also learned the physical therapy we will need to do at home to help develop his motor skills. We went over "Back to Sleep" rules and why they are important in preventing SIDS. We will go over all the same information again on Monday just for Josie.

We are anxious for our family to be home all together. We appreciate so much your thoughts and prayers and encouragement!